Important It is possible that the main title of the report Turcot Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Brain tumor-polyposis syndrome
Turcot syndrome is a rare inherited disorder characterized by the association of benign growths (adenomatous polyps) in the mucous lining of the gastrointestinal tract with tumors of the central nervous system. Symptoms associated with polyp formation may include diarrhea, bleeding from the end portion of the large intestine (rectum), fatigue, abdominal pain, and weight loss. Affected individuals may also experience neurological symptoms, depending upon the type, size and location of the associated brain tumor. Some researchers believe that Turcot syndrome is a variant of familial adenomatous polyposis. Others believe that it is a separate disorder. The exact cause of Turcot syndrome is not known.
American Brain Tumor Association 8550 W. Bryn Mawr Avenue, Suite 550 Chicago, IL 60631 USA Tel: (773)577-8750 Fax: (773)577-8738 Tel: (800)886-2282 Email: email@example.com Internet: http://www.abta.org
March of Dimes Birth Defects Foundation 1275 Mamaroneck Avenue White Plains, NY 10605 Tel: (914)997-4488 Fax: (914)997-4763 Tel: (888)663-4637 Email: Askus@marchofdimes.com Internet: http://www.marchofdimes.com
Familial GI Cancer Registry Mt. Sinai Hospital Joseph and Wolf Lebovic Health Complex 600 University Avenue Toronto Ontario, M5T 3L9 Canada Tel: 4165964200 Fax: 4165855024 Email: firstname.lastname@example.org Internet: http://www.mountsinai.on.ca/care/fgicr
American Cancer Society, Inc. 250 Williams NW St Ste 6000 Atlanta, GA 30303 USA Tel: (404)320-3333 Tel: (800)227-2345 TDD: (866)228-4327 Internet: http://www.cancer.org
NIH/National Institute of Diabetes, Digestive & Kidney Diseases Office of Communications & Public Liaison Bldg 31, Rm 9A06 31 Center Drive, MSC 2560 Bethesda, MD 20892-2560 Tel: (301)496-3583 Email: NDDIC@info.niddk.nih.gov Internet: http://www2.niddk.nih.gov/
National Cancer Institute 6116 Executive Blvd Suite 300 Bethesda, MD 20892-8322 USA Tel: (301)435-3848 Tel: (800)422-6237 TDD: (800)332-8615 Email: email@example.com Internet: http://www.cancer.gov
Southeastern Hereditary Colorectal Cancer Registry University Hospital 1350 Walton Way Augusta, GA 30910-3599 USA Tel: (706)774-8900 Fax: (706)774-8915 Email: firstname.lastname@example.org
Brain Tumour Foundation of Canada 620 Colborne Street Suite 301 London Ontario, N6B 3R9 Canada Tel: 5196427755 Fax: 5196427192 Tel: 8002655106 Email: email@example.com Internet: http://www.braintumour.ca
Brain Tumour UK Tower House Latimer Park Chesham Bucks, HP5 1TU United Kingdom Tel: 08454500386 Email: firstname.lastname@example.org Internet: http://www.braintumouruk.org.uk
Children's Brain Tumor Foundation 274 Madison Avenue, Suite 1004 New York, NY 10016 United States Tel: (212)448-1595 Fax: (212)448-1022 Tel: (866)228-4673 Email: email@example.com Internet: http://www.cbtf.org
OncoLink: The University of Pennsylvania Cancer Center Resource 3400 Spruce Street 2 Donner Philadelphia, PA 19104-4283 USA Tel: (215)349-8895 Fax: (215)349-5445 Email: firstname.lastname@example.org Internet: http://www.oncolink.upenn.edu
Brain Tumor Foundation for Children, Inc. 6065 Roswell Road Suite 505 Atlanta, GA 30328-4015 USA Tel: (404)252-4107 Fax: (404)252-4108 Email: email@example.com Internet: http://www.braintumorkids.org
Rare Cancer Alliance 1649 North Pacana Way Green Valley, AZ 85614 USA Internet: http://www.rare-cancer.org
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation PO Box 241956 Los Angeles, CA 90024 Tel: (310)264-0826 Fax: (310)264-4766 Email: firstname.lastname@example.org Internet: http://www.madisonsfoundation.org
Friends of Cancer Research 1800 M Street NW Suite 1050 South Washington, DC 22202 Tel: (202)944-6700 Email: email@example.com Internet: http://www.focr.org
Cancer.Net American Society of Clinical Oncology 2318 Mill Road Suite 800 Alexandria, VA 22314 Tel: (571)483-1780 Fax: (571)366-9537 Tel: (888)651-3038 Email: firstname.lastname@example.org Internet: http://www.cancer.net/
National Brain Tumor Society 55 Chapel Street Suite 200 Newton, MA 02458 Tel: (617)924-9997 Fax: (617)924-9998 Tel: (800) 770-8287 Email: email@example.com Internet: http://www.braintumor.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 4/28/2008 Copyright 2000, 2003 National Organization for Rare Disorders, Inc.
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