This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International. 54 affiliated groups. Founded 1988. Support, advocacy and information for persons with alpha-1 antitrypsin deficiency and their families. Networking of members through newsletter and support groups across the country. Sharing of current information on treatments and research. Newsletter, group development guidelines, educational materials and advocacy information. Write: Alpha 1 Association 2937 SW 27th Ave., Suite 106 Miami, FL 33133 Voice: 1-800-521-3025 or 305-648-0088 Fax: 305-648-0089 Website: http://www.alpha1.org E-mail: email@example.com Verified: 8/14/2012
American Lung Association
(BILINGUAL) National. Founded 1904. Refers callers to regional resources for information on lung health, smoking and environment. Local chapters can provide referrals to support groups for persons with chronic lung disorders such as emphysema, chronic bronchitis, asthma, pulmonary problems, etc. These groups use names such as 'Easy Breathers' or 'Family Asthma Support Group.' Write: 1301 Pennsylvania Ave. NW Suite 800 Washington, DC 20004 Voice: 1-800-548-8252 Website: http://www.lung.org Verified: 7/31/2012
Asthma and Allergy Foundation of America
National. 100+ affiliated groups and 9 chapters. Founded 1953. Serves persons with asthma and allergic diseases through advocacy, the support of research, patient and public education. Newsletter and support/education groups. Assistance in starting and maintaining groups. Books, videos and other educational resources. Write: Asthma and Allergy Foundation 8201 Corporate Dr., Ste 1000 Landover, MD 20785 Voice: 1-800-727-8462 (Mon.-Fri., 10am-3pm EST) Website: http://www.aafa.org E-mail: firstname.lastname@example.org Verified: 8/14/2012
Coalition for Pulmonary Fibrosis
National. 55 affiliated groups. 25,000 members. Founded 2001. Information, resources, educational materials and support for patients with pulmonary fibrosis. Write: Coalition for Pulmonary Fibrosis 10866 W. Washington Blvd, Ste 343 Culver City, CA 9023295118 Voice: 1-888-222-8541 Website: http://www.coalitionforpf.org E-mail: email@example.com Verified: 7/2/2012
Online. Provides a variety of online support programs for chronic obstructive pulmonary disease patients, caregivers and interested medical personnel. Programs include: moderated mailing lists, forums, chats, a weekly newsletter 'COPD-Watch' for those living alone, 'Smoke No More' for help in quitting smoking and 'Let's Get Fit' exercise program. Website: http://copd-support.com Verified: 6/29/2012
Online. 1000+ members. Provides support for people with any type of interstitial lung disease (including pulmonary fibrosis). Opportunity to meet others with similar conditions, experiences and knowledge. Website: http://www.huff-n-puff.net Verified: 6/29/2012
Bronchiectasis R Us Forums
Online. Provides suport for support for those diagnosed with bronchiectasis, a destructive and widening of the large airways. Website: http://www.bronchiectasis.info Verified: 7/11/2012
The COPD International
Online. Provides support to persons diagnosed with COPD (Chronic Obstructive Pulmonary Disease) as well as their caregivers, via message boards, chatrooms and e-mail discussion groups (to include a quit smoking group). Gives information on local community support groups, guides on how to start and run a local community COPD group via website: http://www.copd-international.com/supportgroup Website: http://www.copd-international.com Verified: 7/31/2012
Online. Provides support for patients diagnosed with COPD via a discussion board. Website: http://copdforum.portalone.us Verified: 8/2/2012
Provides support for patients diagnosed with COPD which includes emphysema and/or chronic bronchitis also with an asthma component. Website: http://health.groups.yahoo.com/group/copdsurvivors E-mail: firstname.lastname@example.org Verified: 8/8/2012
Online. Support for persons afflicted with emphysema. Offers information on local support groups. Forum for sharing ideas and help in dealing with emphysema. Listserv. Advocacy for research. Write: EFFORTS PO Box 20241 Kansas City, MO 64195-0241 Website: http://www.emphysema.net/bindex.html Verified: 7/11/2012
Online. Offers online network of support for people affected by lung cancer via blogs, support and advocacy. Website: http://events.lungevity.org Verified: 7/11/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.com
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