This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
International. 54 affiliated groups. Founded 1988. Support, advocacy and information for persons with alpha-1 antitrypsin deficiency and their families. Networking of members through newsletter and support groups across the country. Sharing of current information on treatments and research. Newsletter, group development guidelines, educational materials and advocacy information. Write: Alpha 1 Association 2937 SW 27th Ave., Suite 106 Miami, FL 33133 Voice: 1-800-521-3025 or 305-648-0088 Fax: 305-648-0089 Website: http://www.alpha1.org E-mail: email@example.com Verified: 9/12/2013
Coalition for Pulmonary Fibrosis
National. 55 affiliated groups. 25,000 members. Founded 2001. Information, resources, educational materials and support for patients with pulmonary fibrosis. Write: Coalition for Pulmonary Fibrosis 10866 W. Washington Blvd, Ste 343 Culver City, CA 9023295118 Voice: 1-888-222-8541 Website: http://www.coalitionforpf.org E-mail: firstname.lastname@example.org Verified: 9/3/2013
Online. Provides support for patients diagnosed with COPD which includes emphysema and/or chronic bronchitis. Website: http://health.groups.yahoo.com/group/copdsurvivors E-mail: email@example.com Verified: 9/3/2013
Online. Support for persons afflicted with emphysema. Offers information on local support groups. Forum for sharing ideas and help in dealing with emphysema. Listserv. Advocacy for research. Write: EFFORTS PO Box 20241 Kansas City, MO 64195-0241 Website: http://www.emphysema.net/bindex.html Verified: 7/25/2013
Pulmonary Fibrosis Foundation
National. Provides support for individuals with pulmonary fibrosis. Dedicated to assisting the pulmonary fibrosis (PF) support goup community as well as aiding in the establishment of new PF in-person and online support groups globally. To find a wide selection of support groups click on 'SUPPORT GROUPS'. Write: PFF 230 East Ohio St., Ste 304 Chicago, IL 60611-3201 Voice: 1-888-733-6741 Fax: 1-866-587-915 Website: http://www.pulmonaryfibrosis.org Verified: 9/25/2013
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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