This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
(BILINGUAL) National. 49 affiliates. Founded 1967. Information and support for people with epilepsy, their families and friends. Publishes 'Epilepsy USA' magazine and a wide range of informational materials for people of all ages. Referrals to local affiliates (many of which have employment-related programs). Write: Epilepsy Foundation 8301 Professional Place East Landover, MD 20785 Voice: 301-459-3700; Professional Library: 1-800-332-1000; Spanish Speakers Only: 1-866-748-8008 Fax: 301-577-2684 Website: http://www.epilepsyfoundation.org E-mail: firstname.lastname@example.org Verified: 7/11/2012
Pyridoxine Dependent Kids
Online. 190+ members. Founded 1998. Support group for parents of children with pyridoxine dependency or parents who are using B6 as an anticonvulsant. Offers public and subscribers only message boards. Website: http://groups.yahoo.com/group/b6children E-mail: email@example.com Verified: 8/2/2012
Charlie Foundation To Help Cure Pediatric Epilepsy
Online. 250 members. Goal is to network and support families using the ketogenic diet to help control their child's epilepsy. Website: http://groups.yahoo.com/group/b6children Verified: 6/29/2012
Ketogenic Diet Support Group
Online. Founded 2000. 34 members. Provides support for parents, family members, and caregivers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders. Website: http://health.groups.yahoo.com/group/ketogenic E-mail: firstname.lastname@example.org Verified: 8/16/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.com
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