This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Association for Macular Diseases, Inc.
National. Founded 1978. Support for persons suffering from macular diseases and their families. Distributes information on vision equipment. Supports national eye bank donor projects devoted solely to macular disease research. Quarterly newsletter, phone support network, participates in seminars and group development guidelines. Dues $20/year. Write: Association for Macular Diseases 210 E. 64th St. New York, NY 10021 Voice: 212-605-3719 (eve.) Fax: 212-605-3795 Website: http://www.macula.org Verified: 7/31/2012
American Council of the Blind
National. 72 affiliates. Founded 1961. Aims to improve the well-being of all blind or visually impaired people and their families through education, support and advocacy. National conference, information and referrals, phone support, state and special interest affiliates e.g. guide dog users, blind lawyers, teachers and students. Magazine published ten times per year (available in Braille, half speed cassette, large print, CD-ROM, online or via e-mail). College scholarships. Online job bank. Chapter development guidelines. Write: American Council of the Blind 2200 Wilson Blvd. Ste 650 Arlington, VA 22201 Voice: 1-800-424-8666 or 202-467-5081 Fax: 703-465-5085 Website: http://www.acb.org E-mail: firstname.lastname@example.org Verified: 6/28/2012
Massachusetts Assoc. for the Blind and Visually Impaired
National. 34 groups. Founded 1903. Support network for persons coping with sight loss. Sponsors support groups for elders and mixed ages. Outreach services and community volunteers. Write: MAB Community Services 200 Ivy St. Brookline, MA 02446 Voice: 617-926-4232 1-800-852-3029 (MA only) (Mon.-Fri., 9am-5pm EST) Fax: 617-738-1247 Website: http://www.mabcommunity.org E-mail: email@example.com or firstname.lastname@example.org Verified: 7/17/2012
Blinded Veterans Association
National. 53 regional groups. Founded 1945. Support, information and outreach to blinded veterans including those who were blinded in combat and those suffering from age-related macular degeneration and other eye diseases. Help in obtaining prosthetic devices and accessing the latest technological advances to assist the blind. Information on benefits and rehabilitation programs. Quarterly newsletter. Regional meetings. Write: Blinded Veterans Association 477 H Street, NW Washington, DC 20001 Voice: 1-800-669-7079 or 202-371-8880 Fax: 202-371-8258 Website: http://www.bva.org E-mail: email@example.com Verified: 8/14/2012
National Federation of the Blind
National. 52 affiliates. Founded 1940. Serves as both an advocacy and a public information vehicle. Provides support and information on services and applicable laws. Student scholarships. Assists blind persons who are victims of discrimination. Literature, monthly meetings and magazine. Assistance in starting new groups. Write: National Federation of Blind 200 E. Wells St. Baltimore, MD 21230-4998 Voice: 410-659-9314 Fax: 410-685-5653 Website: http://www.nfb.org E-mail: firstname.lastname@example.org Verified: 7/26/2012
Council of Citizens with Low Vision International
International. Founded 1979. Encourages low vision people to make full use of vision through use of equipment, technology and services. Education, advocacy, quarterly magazine, group development guidelines, scholarships, conferences, information and referrals. Write: CCLVI 2200 Wilson Blvd. Arlington, VA 22201 Voice: 1-800-733-2258 (Mon.-Fri, 9am-4pm EST) Website: http://www.cclvi.org E-mail: email@example.com Verified: 7/25/2012
National Organization of Parents of Blind Children
National. 25 chapters. Founded 1983. Serves as both an advocacy and public information vehicle. Provides information on services available. Offers positive philosophy and insights into blindness and practical guidance in raising a blind child. 'Future Reflections' magazine, parent seminars, free parents' information packet, meetings and conventions. Dues $8. Write: National Organization of Parents of Blind Children 200 East Well St. Baltimore, MD 21230 Voice: 410-659-9314 Fax: 410-685-5653 Website: http://www.nopbc.org E-mail: firstname.lastname@example.org Verified: 7/25/2012
Leber's Congenital Amaurosis eGroup
Online. 750 members. Founded 1999. Provides a listserv for persons who are interested in sharing, support and information relating to the genetic disorder. Website: http://groups.yahoo.com/group/lca E-mail: email@example.com Verified: 7/2/2012
National Keratoconus Foundation
National network. Founded 1986. Provides information and support to persons with keratoconus, an eye condition where the cornea progressively thins causing a cone-like bulge. Newsletter, phone support, information and referrals. Online support group. Encourages research into cause and treatment. Write: National Keratoconus Foundation 6222 Wilshire Blvd. Ste. 260 Los Angeles, CA 90048 Voice: 1-800-521-2524 Fax: 310-623-1837 Website: http://www.nkcf.org E-mail: firstname.lastname@example.org Verified: 7/2/2012
Aniridia Foundation International
International. Founded 2002. Offers support, data studies, research, and education to the public, medical community and families with aniridia syndrome. (Children born with multiple blinding eye and medical conditions). Provides medical and social conferences, newsletters, medical research for conditions which make up the condition. Write: Aniridia Foundation International, c/o Univ. of Va, School of Med. P.O. Box 800717 Charlottesville, VA 22908-0715 Voice: 434-243-3357 Website: http://www.research4vision.org E-mail: email@example.com Verified: 7/26/2012
Jewish Guild for the Blind, The
National. Founded 1914. Support for persons of all ages who are visually impaired, blind and those with additional disabilities. Telephone support network brings together parents from around the country whose children have the same condition (Retinopathy of Prematurity, Retinitis Pigmentosa, Cortical Visual Impairment, Leber Congenital Amaurosis CHARGE Syndrome and a group for blind teenagers planning to attend college) to speak with parents in the same situation. Newsletter and literature available on the website or in hard copy. Write: The Jewish Guild for the Blind 15 West 65th Street New York, NY 10023 Voice: 1-800-284-4422 or 212-769-6200. For direct information on the tele-support network call Dan Callahan 212-769-7815 Website: http://www.jgb.org E-mail: firstname.lastname@example.org Verified: 6/28/2012
MD Support: The Eyes of the Macular Degeneration Community
International. 134 chapters/affiliated groups. Founded 1995. Provides information and support for people who are affected by macular degeneration and similar retinal diseases. Large informational website, monthly webcasts, email discussion group, message board, telephone and live support groups, telephone help line. Write: MD Support 3600 Blue Ridge Blvd. Grandview, MO 64030 Voice: 816-731-7080 Website: http://www.mdsupport.org E-mail: email@example.com Verified: 8/9/2012
Congenital Glaucoma Network, The
Online. Founded 2011. Provides support, facilitates discussion and promotes awareness of congenital and childhood glaucoma internationally. Contact via website's contact page Website: http://congenitalglaucomanetwork.com Verified: 7/11/2012
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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