Important It is possible that the main title of the report Reflex Sympathetic Dystrophy Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Causalgia Syndrome (Major)
Reflex Neurovascular Dystrophy
Complex Regional Pain Syndrome
Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome, is a rare disorder of the sympathetic nervous system that is characterized by chronic, severe pain. The sympathetic nervous system is that part of the autonomic nervous system that regulates involuntary functions of the body such as increasing heart rate, constricting blood vessels, and increasing blood pressure. Excessive or abnormal responses of portions of the sympathetic nervous system are thought to be responsible for the pain associated with reflex sympathetic dystrophy syndrome.
The symptoms of reflex sympathetic dystrophy syndrome typically begin with burning pain, especially in an arm, finger(s), palm of the hand(s), and/or shoulder(s). In some individuals, RSDS may occur in one or both legs or it may be localized to one knee or hip. Frequently, RSDS may be misdiagnosed as a painful nerve injury. The skin over the affected area(s) may become swollen (edema) and inflamed. Affected skin may be extremely sensitive to touch and to hot or cold temperatures (cutaneous hypersensitivity). The affected limb(s) may perspire excessively and be warm to the touch (vasomotor instability). The exact cause of RSDS is not fully understood, although it may be associated with injury to the nerves, trauma, surgery, atherosclerotic cardiovascular disease, infection, or radiation therapy.
Reflex Sympathetic Dystrophy Syndrome Association of America PO Box 502 Milford, CT 06460 Tel: (203)877-3790 Fax: (203)882-8362 Tel: (877)662-7737 Email: firstname.lastname@example.org Internet: http://www.rsds.org
American Chronic Pain Association P.O. Box 850 Rocklin, CA 95677 USA Tel: (916)632-0922 Fax: (916)632-3208 Tel: (800)533-3231 Email: ACPA@pacbell.net Internet: http://www.theacpa.org
Arthritis Foundation P.O. Box 7669 Atlanta, GA 30357-0669 USA Tel: (404)965-7627 Tel: (800)283-7800 Email: email@example.com Internet: http://www.arthritis.org
NIH/National Institute of Neurological Disorders and Stroke P.O. Box 5801 Bethesda, MD 20824 Tel: (301)496-5751 Fax: (301)402-2186 Tel: (800)352-9424 TDD: (301)468-5981 Email: firstname.lastname@example.org Internet: http://www.ninds.nih.gov/
American Pain Society 4700 West Lake Avenue Glenview, IL 60025 Tel: (847)375-4715 Fax: (866)574-2654 Email: email@example.com Internet: http://www.ampainsoc.org
Pain.com c/o Dannemiller, Inc. 5711 Northwest Parkway San Antonio, TX 78246 Tel: (210)641-8311 Fax: (210)641-8329 Email: firstname.lastname@example.org Internet: http://www.pain.com
American RSDHope P.O. Box 875 Harrison, ME 04040-0875 USA Tel: (207)583-4589 Fax: (207)583-4978 Email: email@example.com Internet: http://www.rsdhope.org
International Association for the Study of Pain IASP Secretariat 111 Queen Anne Ave N, Suite 501 Seattle, WA 98109-4955 Tel: (206)283-0311 Fax: (206)283-9403 Email: IASPdesk@iasp-pain.org Internet: http://www.iasp-pain.org
Vasculitis of the Central Nervous System vasculitisoftheCNS@yahoogroups.com Tel: (770)978-5636 Email: firstname.lastname@example.org Internet: http://www.VasculitisoftheCNS@yahoogroups.com
MUMS National Parent-to-Parent Network 150 Custer Court Green Bay, WI 54301-1243 USA Tel: (920)336-5333 Fax: (920)339-0995 Tel: (877)336-5333 Email: email@example.com Internet: http://www.netnet.net/mums/
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
P.A.R.C. Promoting Awareness of RSD/CRPS in Canada PO Box 21026 St. Catharines Ontario, L2M 7X2 Canada Tel: 905-934-0261 Email: firstname.lastname@example.org Internet: http://www.rsdcanada.org/parc/english/index.html
American Pain Foundation 201 North Charles Street Suite 710 Baltimore, MD 21201-4111 Tel: (410)783-7292 Fax: (410)385-1832 Tel: (888)615-7246 Email: email@example.com Internet: http://www.painfoundation.org
Multiply, Inc. 6001 Park of Commerce Blvd. Suite 300 Boca Raton, FL 33487 USA Internet: http://wristinstability.multiply.com/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 8/17/2007 Copyright 1986, 1987, 1994, 1995, 1996, 1997, 1998, 1999, 2000, 2004, 2007 National Organization for Rare Disorders, Inc.
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