Important It is possible that the main title of the report Familial Adenomatous Polyposis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
adenomatous polyposis of the colon (APC)
familial multiple polyposis
hereditary polyposis coli
multiple polyposis of the colon
familial adenomatous polyposis
Familial adenomatous polyposis (FAP) is a rare inherited cancer predisposition syndrome characterized by hundreds to thousands of precancerous colorectal polyps (adenomatous polyps). If left untreated, affected individuals inevitably develop cancer of the colon and/or rectum. FAP is inherited in an autosomal dominant manner and caused by abnormalities (mutations) in the APC gene. Mutations in the APC gene cause a group of polyposis conditions that have overlapping features: familial adenomatous polyposis, Gardner syndrome, Turcot syndrome and attenuated FAP.
Familial GI Cancer Registry Mt. Sinai Hospital Joseph and Wolf Lebovic Health Complex 600 University Avenue Toronto Ontario, M5T 3L9 Canada Tel: 4165964200 Fax: 4165855024 Email: email@example.com Internet: http://www.mountsinai.on.ca/care/fgicr
American Cancer Society, Inc. 250 Williams NW St Ste 6000 Atlanta, GA 30303 USA Tel: (404)320-3333 Tel: (800)227-2345 TDD: (866)228-4327 Internet: http://www.cancer.org
National Cancer Institute 6116 Executive Blvd Suite 300 Bethesda, MD 20892-8322 USA Tel: (301)435-3848 Tel: (800)422-6237 TDD: (800)332-8615 Email: firstname.lastname@example.org Internet: http://www.cancer.gov
M. D. Anderson Cancer Center Hereditary Colorectal Cancer Registry Dept of Gastrointestinal Oncology 1515 Holcombe Boulevard P.O. Box 78 Houston, TX 77030 Tel: (713)792-3245 Fax: (713)745-1163 Tel: (877)632-6789 Email: email@example.com Internet: http://www.mdanderson.org/about-us/index.html
OncoLink: The University of Pennsylvania Cancer Center Resource 3400 Spruce Street 2 Donner Philadelphia, PA 19104-4283 USA Tel: (215)349-8895 Fax: (215)349-5445 Email: firstname.lastname@example.org Internet: http://www.oncolink.upenn.edu
Strang-Cornell Hereditary Colon Cancer Program 428 East 72nd Street New York, NY 10021 USA Tel: (212)794-4900 Fax: (212)794-4958 Email: email@example.com Internet: http://www.strang.org
Rare Cancer Alliance 1649 North Pacana Way Green Valley, AZ 85614 USA Internet: http://www.rare-cancer.org
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation PO Box 241956 Los Angeles, CA 90024 Tel: (310)264-0826 Fax: (310)264-4766 Email: firstname.lastname@example.org Internet: http://www.madisonsfoundation.org
Friends of Cancer Research 1800 M Street NW Suite 1050 South Washington, DC 22202 Tel: (202)944-6700 Email: email@example.com Internet: http://www.focr.org
Cancer.Net American Society of Clinical Oncology 2318 Mill Road Suite 800 Alexandria, VA 22314 Tel: (571)483-1780 Fax: (571)366-9537 Tel: (888)651-3038 Email: firstname.lastname@example.org Internet: http://www.cancer.net/
Cancer Support Community 1050 17th St NW Suite 500 Washington, DC 20036 Tel: (202)659-9709 Fax: (202)974-7999 Tel: (888)793-9355 Internet: http://www.cancersupportcommunity.org/
Desmoid Tumor Research Foundation P.O. Box 273 Suffern, NY 10901 Tel: (914)262-6595 Fax: (845)369-8302 Email: email@example.com Internet: http://www.dtrf.org
Lance Armstrong Foundation 2201 E. Sixth Street Austin, TX 78702 Tel: (512)236-8820 Fax: (512)236-8482 Tel: (877)236-8820 Email: firstname.lastname@example.org Internet: http://www.livestrong.org
CORE 3 St. Andrews Place London, NW1 4LB United Kingdom Tel: 02074860341 Fax: 02072242012 Email: email@example.com Internet: http://www.corecharity.org.uk
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
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