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Multiple Endocrine Neoplasia Type 1

Multiple Endocrine Neoplasia Type 1

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Multiple Endocrine Neoplasia Type 1 is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • MEN-1
  • MEN-1 syndrome
  • multiple endocrine adenomatosis
  • Wermer's syndrome

Disorder Subdivisions

  • None

General Discussion

Multiple endocrine neoplasia (MEN) type 1 is a rare genetic disorder in which benign (noncancerous) tumors arise from the cells of various glands of the endocrine system. The endocrine system is the network of glands that secrete hormones into the bloodstream where they travel to various areas of the body. These hormones regulate the chemical processes (metabolism) that influence the function of various organs and activities within the body. Hormones are involved in numerous vital processes including regulating heart rate, body temperature and blood pressure as well as cell differentiation and growth and also in modulation of several metabolic processes. In individuals with MEN type 1, benign tumors develop in multiple endocrine glands, most often the parathyroid, pancreas and pituitary glands. These affected glands secrete excessive amounts of hormones into the bloodstream, which can result in a variety of symptoms. Some benign tumors associated with MEN type 1 can become malignant (cancerous). MEN type 1 can run in families or can occur as the result of a new gene mutation in the affected person.

Resources

Pituitary Network Association
P.O. Box 1958
Thousand Oaks, CA 91358
USA
Tel: (805)499-9973
Fax: (805)480-0633
Email: info@pituitary.org
Internet: http://www.pituitary.org

American Cancer Society, Inc.
1599 Clifton Road NE
Atlanta, GA 30329
USA
Tel: (404)320-3333
Tel: (800)227-2345
TDD: (866)228-4327
Internet: http://www.cancer.org

NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583
Email: NDDIC@info.niddk.nih.gov
Internet: http://www2.niddk.nih.gov/

Canadian Multiple Endocrine Neoplasia Society, Inc.
1432 107th Street
North Battleford, S9A 19
Canada
Tel: 306 445 8436
Fax: 306 445 8436
Email: hockey_freak99@hotmail.com

Carcinoid Cancer Foundation
333 Mamaroneck Avenue #492
White Plains, NY 10605
USA
Tel: (914)683-1001
Fax: (914)683-0183
Tel: (888)722-3132
Email: carcinoid@optonline.net
Internet: http://www.carcinoid.org

Hormone Foundation
8401 Connecticut Avenue
Suite 900
Chevy Chase, MD 20815-5817
Fax: (310)941-0259
Tel: (800)467-6663
Email: hormone@endo-society.org
Internet: http://www.hormone.org/

Pituitary Foundation
PO Box 1944
Bristol, BS99 2UB
UK
Tel: 0845 450 0375
Fax: 0117 933 0910
Email: helpline@pituitary.org.uk
Internet: http://www.pituitary.org.uk

Association for Multiple Endocrine Neoplasia Disorders (AMEND)
The Warehouse
No. 1 Draper Street
Royal Tunbridge Wells,
Kent, TN4 0PG
UK
Tel: 00 44 1892 516076
Fax: 00 44 1892 516076
Email: info@amend.org.uk
Internet: http://www.amend.org.uk

NET Patient Foundation
Enton Mill
Enton
Godalming
Surrey, GU8 5AH
UK
Tel: 0800 4346476
Internet: http://www.netpatientfoundation.com

American Multiple Endocrine Neoplasia Support
1027 Hampshire Drive
Maryville, TN 37801
Tel: (865)981-8815
Fax: (865)238-5844
Tel: (866)612-8579
Email: Linda@hagemanfoundation.org
Internet: http://www.amensupport.org

Pheo Para Troopers
P.O. Box 2064
Kokomo, IN 46904
Email: info@pheoparatroopers.org
Internet: http://www.pheoparatroopers.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  11/9/2009
Copyright  2009 National Organization for Rare Disorders, Inc.

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