This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Twin to Twin Transfusion Syndrome Foundation
(MULTILINGUAL) International. 12 national coordinators. Founded 1989. Dedicated to providing immediate and lifesaving educational, emotional and financial support for families, medical professionals and caregivers before, during and after pregnancy with twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health and care, furthering medical research, providing neonatal intensive care, special needs and bereavement support. Newsletter, literature, phone support, visitation and conferences. Message boards and private group on Facebook for diagnosed, loss of one, loss of both, special needs and NICU support. Guidelines for professionals on multiple birth loss during pregnancy. International registry. Website in many languages. Write: Twin to Twin Transfusion Syn Assoc 411 Longbeach Parkway Bay Village, OH 44140 Voice: 1-800-815-9211 Website: http://www.tttsfoundation.org and http://www.facebook.com/groups/tttsfoundation E-Mail: email@example.com Verified: 3/12/2014
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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If you find information that is not current, please contact American Self-Help Group Clearinghouse at: firstname.lastname@example.org
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