This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Marinesco Sjogren Syndrome
International. Provides information and support to families affected by MSS and to encourage communication between doctors and researchers interested in this disorder. Website provides a listserv, connections with others, information about MSS, as well as links to other useful sites. Website: http://marinesco-sjogren.org E-Mail: firstname.lastname@example.org Verified: 3/12/2014
Sjogren's Syndrome Foundation, Inc.
National. 78 groups. Founded 1983. Information and education for Sjogren's syndrome patients, families, health professionals and the public. Opportunities for patients to share ways of coping. Stimulates research for treatments and cures. Newsletter 'Moisture Seekers,' audio tapes, annual symposium and Sjogren's handbook. Write: Sjogren's Syndrome Foundation 6707 Democracy Blvd., Suite 325 Bethesda, MD 20817 Voice: 1-800-475-6473 or 301-530-4420 Fax: 301-530-4415 Website: http://www.sjogrens.org Verified: 3/5/2014
Online. 826 members. Founded 1999. Caring internet community built for people who have Sjogren's Syndrome (a chronic, slowly progressive autoimmune disease that affects the exocrine glands) to meet and share experiences, personal knowledge and to disseminate information to improve quality of life. Discussion forums, instant messaging, live chats and e-mail lists. Website: http://www.sjogrensworld.org Verified: 3/5/2014
The above information was 'verified' as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
If you find information that is not current, please contact American Self-Help Group Clearinghouse at: email@example.com
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