Important It is possible that the main title of the report Keratoconus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Keratoconus is a non-inflammatory eye (ocular) condition characterized by progressive changes of the shape of the cornea. The cornea is the thin-walled, "dome-shaped" transparent region forming the front of the eyeball; it serves as a protective covering and helps to focus or bend (refract) light waves onto the retina at the back of the eye. In those with Keratoconus, slowly progressive thinning of the cornea causes it to protrude forward in a conical shape, leading to blurry vision and other vision problems. Keratoconus often begins at puberty. Although the specific underlying cause of the condition is unknown, investigators indicate that genetic factors may play some role. In addition, in some cases, Keratoconus may occur in association with a variety of other disorders.
Lighthouse International 111 E 59th St New York, NY 10022-1202 Tel: (800)829-0500 Email: firstname.lastname@example.org Internet: http://www.lighthouse.org
Eye Bank Association of America 1015 18th Street, NW Suite 1010 Washington, DC 20036 Tel: (202)775-4999 Fax: (202)429-6036 Email: email@example.com Internet: http://www.restoresight.org
NIH/National Eye Institute 31 Center Dr MSC 2510 Bethesda, MD 20892-2510 United States Tel: (301)496-5248 Fax: (301)402-1065 Email: firstname.lastname@example.org Internet: http://www.nei.nih.gov/
National Keratoconus Foundation 6222 Wilshire Blvd. Ste. 260 Los Angeles, CA 90048 Tel: (310)623-4466 Fax: (310)623-1837 Tel: (800)521-2524 Email: email@example.com Internet: http://www.nkcf.org
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
Cornea Research Foundation of America 9002 North Meridian Street Ste. 212 Indianapolis, IN 46260 Tel: (317)844-5610 Fax: (317)814-2806 Tel: (800)317-3937 Email: firstname.lastname@example.org Internet: http://www.cornea.org
Corneal Dystrophy Foundation 6066 McAbee Rd. San Jose, CA 95120 USA Fax: (408)490-2775 Tel: (866)807-8965 Email: email@example.com Internet: http://www.cornealdystrophyfoundation.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 5/24/2008 Copyright 1988, 1989, 2001, 2002 National Organization for Rare Disorders, Inc.
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