Important It is possible that the main title of the report Idiopathic Pulmonary Fibrosis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Cryptogenic Fibrosing Alveolitis
Diffuse Fibrosing Alveolitis
Interstitial Diffuse Pulmonary Fibrosis
Idiopathic pulmonary fibrosis is an inflammatory lung disorder of unknown origin (idiopathic) characterized by abnormal formation of fibrous tissue (fibrosis) between the tiny air sacs (alveoli) or ducts of the lungs. Coughing and rapid, shallow breathing occur with moderate exercise. The skin may appear slightly bluish (cyanotic) due to lack of circulating oxygen. Complications such as infection, emphysema or heart problems may develop.
Scleroderma Research Foundation 220 Montgomery Street Suite 1411 San Francisco, CA 94104 USA Tel: (415)834-9444 Fax: (415)834-9177 Tel: (800)441-2873 Email: firstname.lastname@example.org Internet: http://www.srfcure.org/home
American Autoimmune Related Diseases Association, Inc. 22100 Gratiot Ave. Eastpointe, MI 48021 Tel: (586)776-3900 Fax: (586)776-3903 Tel: (800)598-4668 Email: email@example.com Internet: http://www.aarda.org/
American Lung Association 1301 Pennsylvania Ave NW Suite 800 Washington, DC 20004 USA Tel: (202)785-3355 Fax: (202)452-1805 Tel: (800)586-4872 Email: firstname.lastname@example.org Internet: http://www.lungusa.org
NIH/National Heart, Lung and Blood Institute P.O. Box 30105 Bethesda, MD 20892-0105 Tel: (301)592-8573 Fax: (301)251-1223 Email: email@example.com Internet: http://www.nhlbi.nih.gov/
Coalition for Pulmonary Fibrosis 10866 W Washington Blvd Ste 343 Culver City, CA 90232 USA Tel: (888)222-8541 Fax: (408)266-3289 Tel: (888)222-8541 Email: firstname.lastname@example.org Internet: http://www.coalitionforpf.org
Pulmonary Fibrosis Foundation 230 East Ohio Street Suite 304 Chicago, IL 60611-3201 USA Fax: (866)587-9158 Tel: (888)733-6741 Email: email@example.com Internet: http://www.pulmonaryfibrosis.org
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
Autoimmune Information Network, Inc. PO Box 4121 Brick, NJ 08723 Fax: (732)543-7285 Email: firstname.lastname@example.org
European Society for Immunodeficiencies 1-3 rue de Chantepoulet Geneva, CH 1211 Switzerland Tel: 410229080484 Fax: 41229069140 Email: email@example.com Internet: http://www.esid.org
AutoImmunity Community Email: firstname.lastname@example.org Internet: http://www.autoimmunitycommunity.org
Global Fibrosis Foundation 5036 Dr. Phillips Boulevard Suite 244 Orlando, FL 32819 Tel: (407)909-0753 Fax: (407)909-0153 Tel: (800)872-6874 Email: email@example.com Internet: http://www.globalfibrosis.com
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 3/16/2007 Copyright 1987, 1989, 1999, 2000, 2004, 2007 National Organization for Rare Disorders, Inc.
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