Important It is possible that the main title of the report Extrahepatic Biliary Atresia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Extrahepatic biliary atresia is a rare gastrointestinal disorder characterized by destruction or absence of all or a portion of the bile duct that lies outside the liver (extrahepatic bile duct). The bile duct is a tube that allows the passage of bile from the liver into the gall bladder and, eventually, the small intestine. Bile is a liquid secreted by the liver that plays an essential role in carrying waste products from the liver and promoting absorption of fats and vitamins by the intestines. In extrahepatic biliary atresia, absence or destruction of the bile ducts results in the abnormal accumulation of bile in the liver. Affected infants have yellowing of the skin and whites of the eyes (jaundice) and scarring of the liver (fibrosis). In some cases, additional abnormalities may be present, including heart defects and intestinal, spleen and kidney malformations. The exact cause of extrahepatic biliary atresia is unknown.
March of Dimes Birth Defects Foundation 1275 Mamaroneck Avenue White Plains, NY 10605 Tel: (914)997-4488 Fax: (914)997-4763 Tel: (888)663-4637 Email: Askus@marchofdimes.com Internet: http://www.marchofdimes.com
American Liver Foundation 39 Broadway, Suite 2700 New York, NY 10006 USA Fax: (212)483-8179 Tel: (800)465-4837 Email: http://www.liverfoundation.org/contact/ Internet: http://www.liverfoundation.org
NIH/National Institute of Diabetes, Digestive & Kidney Diseases Office of Communications & Public Liaison Bldg 31, Rm 9A06 31 Center Drive, MSC 2560 Bethesda, MD 20892-2560 Tel: (301)496-3583 Email: NDDIC@info.niddk.nih.gov Internet: http://www2.niddk.nih.gov/
Children's Liver Disease Foundation 36 Great Charles Street Birmingham, B3 3JY United Kingdom Tel: 01212123839 Fax: 01212124300 Email: firstname.lastname@example.org Internet: http://www.childliverdisease.org
Children's Liver Association for Support Services (C.L.A.S.S.) 25379 Wayne Mills Place, Suite 143 Valencia, CA 91355 USA Tel: (661)263-9099 Fax: (661)263-9099 Tel: (877)679-8256 Email: email@example.com Internet: http://www.classkids.org
Canadian Liver Foundation 3100 Steeles Avenue East Suite 801 Markham Ontario, L3R 8T3 Canada Tel: 4164913353 Fax: 9057521540 Tel: 8005635483 Email: firstname.lastname@example.org Internet: http://www.liver.ca
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation PO Box 241956 Los Angeles, CA 90024 Tel: (310)264-0826 Fax: (310)264-4766 Email: email@example.com Internet: http://www.madisonsfoundation.org
Childhood Liver Disease Research and Education Network c/o Joan M. Hines, Research Administrator Children's Hospital Colorado 13123 E 16th Ave. B290 Aurora, CO 80045 Tel: (720)777-2598 Fax: (720)777-7351 Email: firstname.lastname@example.org Internet: http://www.childrennetwork.org
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This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
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It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
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