Important It is possible that the main title of the report Patulous Eustachian Tube is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
In patulous eustachian tube (pET) dysfunction, the eustachian tube stays open most of the time. The eustachian tube is a passageway from the back of the nose to the middle ear that may be opened or closed by action of a valve-like device. Under normal circumstances, it remains closed for most of the day, opening only on occasion to equalize air pressure in the middle ear and the exterior environment.
If the tube remains open, the patient complains of hearing one's own voice or one's breathing as too loud (autophony), hearing echoes of one's own voice, or hearing ocean waves much like the sound produced by holding a shell over one's ear.
The condition is benign but may generate, over time, serious and even extreme responses to the abnormal sounds.
Better Hearing Institute 1444 I Street NW Suite 700 Washington, DC 20005 United States Tel: (202)449-1100 Fax: (703)684-6048 Tel: (800)327-9355 Email: firstname.lastname@example.org Internet: http://www.betterhearing.org
Starkey Hearing Foundation 6700 Washington Avenue South Suite 300 Eden Prairie,, MN 55344 United States Tel: (866)354-3254 Fax: (952)828-6946 Tel: (800)648-4327 TDD: (800)648-4327 Email: email@example.com Internet: http://www.sotheworldmayhear.org/
American Hearing Research Foundation 8 South Michigan Avenue Suite 1205 Chicago, IL 60603-4539 USA Tel: (312)726-9670 Fax: (312)726-9695 Email: firstname.lastname@example.org Internet: http://www.american-hearing.org/
NIH/National Institute on Deafness and Other Communication Disorders 31 Center Drive, MSC 2320 Communication Avenue Bethesda, MD 20892-3456 Tel: (301)402-0900 Fax: (301)907-8830 Tel: (800)241-1044 TDD: (800)241-1105 Email: email@example.com Internet: http://www.nidcd.nih.gov
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
American Academy of Audiology 11730 Plaza America Drive, Suite 300 Reston, VA 20190 Tel: (703)790-8466 Fax: (703)790-8631 Tel: (800)222-2336 Email: firstname.lastname@example.org Internet: http://www.audiology.org
Ear Foundation of Santa Barbara 2420 Castillo Street Suite 100 Santa Barbara, CA 93105-4346 Tel: (805)569-1111 Fax: (805)563-2277 Email: email@example.com Internet: http://earfdn.org/index.htm
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 3/17/2008 Copyright 1986, 1989, 1996, 1997, 2004 National Organization for Rare Disorders, Inc.
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