Important It is possible that the main title of the report Retinitis Pigmentosa is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
progressive pigmentary retinopathy
Retinitis pigmentosa (RP) comprises a large group of inherited vision disorders that cause progressive degeneration of the retina, the light sensitive membrane that coats the inside of the eyes. Peripheral (or side) vision gradually decreases and eventually is lost in most cases. Central vision is usually preserved until late in these conditions. Some forms of RP can be associated with deafness, obesity, kidney disease, and various other general health problems, including central nervous system and metabolic disorders, and occasionally chromosomal abnormalities.
Foundation Fighting Blindness 7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046 Tel: (410)423-0600 Fax: (410)872-0574 Tel: (800)683-5555 TDD: (800)683-5551 Email: info@FightBlindness.org Internet: http://www.blindness.org/
Lighthouse International 111 E 59th St New York, NY 10022-1202 Tel: (800)829-0500 Email: email@example.com Internet: http://www.lighthouse.org
Retinitis Pigmentosa International P.O. Box 900 Woodland Hills, CA 91365 Tel: (818)992-0500 Fax: (818)992-3265 Tel: (800)344-4877 Email: firstname.lastname@example.org Internet: http://www.rpinternational.org
National Association for Parents of Children with Visual Impairments (NAPVI) P.O. Box 317 Watertown, MA 02272-0317 Tel: (617)972-7441 Fax: (617)972-7444 Tel: (800)562-6265 Email: email@example.com Internet: http://www.napvi.org
National Federation of the Blind 200 East Wells Street at Jernigan Place Baltimore, MD 21230 USA Tel: (410)659-9314 Fax: (410)685-5653 Email: firstname.lastname@example.org Internet: http://www.nfb.org
American Foundation for the Blind 2 Penn Plaza Suite 1102 New York, NY 10121 Tel: (212)502-7600 Fax: (888)545-8331 Tel: (800)232-5463 TDD: (212)502-7662 Email: email@example.com Internet: http://www.afb.org
American Council of the Blind 2200 Wilson Boulevard Suite 650 Arlington, VA 22201 Tel: (202)467-5081 Fax: (202)465-5085 Tel: (800)424-8666 Email: firstname.lastname@example.org Internet: http://www.acb.org/
American Printing House for the Blind 1839 Frankfort Avenue P.O. Box 6085 Louisville, KY 40206-0085 USA Tel: (502)895-2405 Fax: (502)899-2274 Tel: (800)223-1839 Email: email@example.com Internet: http://www.aph.org
NIH/National Eye Institute 31 Center Dr MSC 2510 Bethesda, MD 20892-2510 United States Tel: (301)496-5248 Fax: (301)402-1065 Email: firstname.lastname@example.org Internet: http://www.nei.nih.gov/
Recording for the Blind and Dyslexic 20 Roszel Road Princeton, NJ 08540 Fax: (609)987-8116 Tel: (800)221-4792 Email: email@example.com Internet: http://www.rfbd.org/
Blind Children's Center 4120 Marathon Street Los Angeles, CA 90029-3584 USA Tel: (323)664-2153 Fax: (323)665-3828 Tel: (800)222-3566 Email: firstname.lastname@example.org Internet: http://www.blindchildrenscenter.org
Association for Retinopathy of Prematurity and Related Diseases 39650 Orchard Hill Place Novi, MI 48375 Tel: (248)319-0161 Fax: (248)788-4589 Tel: (800)788-2020 Email: email@example.com Internet: http://www.ropard.org
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
Perkins School for the Blind 175 North Beacon Street Watertown, MA 02472 Tel: (617)924-3434 Fax: (617)926-2027 Email: Info@Perkins.org Internet: http://www.Perkins.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 8/2/2012 Copyright 1984, 1985, 1986, 1987, 1988, 1989, 1990, 1992, 1993, 1994, 1995, 1997, 1999, 2000, 2001, 2002, 2005, 2009, 2012 National Organization for Rare Disorders, Inc.
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