Important It is possible that the main title of the report Sudden Unexplained Death in Childhood is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Sudden unexplained death in childhood (SUDC) is defined as the sudden death of a child greater than one year of age that remains unexplained after a thorough case investigation, including performance of a complete autopsy, examination of the death scene, and review of the clinical history.
SUDC deaths have occurred at the following sites:
Death at home, history provided: 79% Crib or bassinet: 54% Adult bed: 36%
The placed and found positions were as follows:
Placed supine, side, prone*: 10%, 2%, 3% Found prone: 89% Found face position: down, side: 10%, 8% Co-sleeping, sweating when found: 3%, 1%
*applies only to youngest children
First Candle-SIDS Alliance 2105 Laurel Bush Road Suite 201 Bel Air, MD 21015 Tel: (443)640-1049 Tel: (800)221-7437 Email: firstname.lastname@example.org Internet: http://www.firstcandle.org
National Sudden and Unexpected Infant/Child Death Resource Center 2115 Wisconsin Avenue, NW Suite 601 Washington, DC 20007 Tel: (202)687-7466 Fax: (202)784-9777 Tel: (866)866-7437 Email: email@example.com Internet: http://www.sidscenter.org
NIH/National Institute of Neurological Disorders and Stroke P.O. Box 5801 Bethesda, MD 20824 Tel: (301)496-5751 Fax: (301)402-2186 Tel: (800)352-9424 TDD: (301)468-5981 Internet: http://www.ninds.nih.gov/
SIDS Educational Services, Inc. PO Box 2426 Hyattsville, MD 20784-0426 Tel: (301)322-2620 Fax: (301)322-9822 Email: firstname.lastname@example.org Internet: http://www.sidssurvivalguide.org
NIH/National Institute of Child Health and Human Development 31 Center Dr Building 31, Room 2A32 MSC2425 Bethesda, MD 20892 Fax: (866)760-5947 Tel: (800)370-2943 TDD: (888)320-6942 Email: NICHDInformationResourceCenter@mail.nih.gov Internet: http://www.nichd.nih.gov/
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
CJ Foundation for SIDS, Inc. HUMC: WFAN Pediatric Center 30 Prospect Avenue Hackensack, NJ 07601 Tel: (551)996-5301 Fax: (551)996-5326 Tel: (888)825-7437 Email: email@example.com Internet: http://www.cjsids.org
Sudden Unexplained Death In Childhood Program c/o CJ Foundation for SIDS The Don Imus WFAN Pediatric Center 30 Prospect Ave. Hackensack, NJ 07601 Tel: (201)996-5080 Fax: (201)996-5326 Tel: (800)620-7832 Email: firstname.lastname@example.org Internet: http://www.sudc.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 4/28/2010 Copyright 2010 National Organization for Rare Disorders, Inc.
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