Important It is possible that the main title of the report Pediatric Cardiomyopathy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
arrhythmogenic right ventricular cardiomyopathy (ARVC)
asymmetrical septal hypertrophy
familial congestive cardiomyopathy
familial dilated cardiomyopathy (FDC)
hypertrophic obstructive cardiomyopathy (HOCM)
idiopathic dilated cardiomyopathy
idiopathic hypertrophic subaortic stenosis
non-obstructive hypertrophic cardiomyopathy
arrhythmogenic right ventricular dysplasia (ARVD)
hypertrophic cardiomyopathy (HCM)
Pediatric cardiomyopathy is a rare heart condition that affects infants and children. Specifically, cardiomyopathy means disease of the heart muscle (myocardium). Several different types of cardiomyopathy exist and the specific symptoms vary from case to case. In some cases, no symptoms may be present (asymptomatic); in many cases, cardiomyopathy is a progressive condition that may result in an impaired ability of the heart to pump blood; fatigue; heart block; irregular heartbeats (tachycardia); and, potentially, heart failure and sudden cardiac death.
Cardiomyopathy may be termed ischemic or nonischemic. Ischemic cardiomyopathy refers to cases that occur due to a lack of blood flow and oxygen (ischemia) to the heart. Such cases often result from hardening of the arteries (coronary artery disease). Nonischemic cardiomyopathy refers to cases that occur due to structural damage or malfunction of the heart muscle. Nearly all cases of pediatric cardiomyopathy are nonischemic. This report deals with nonischemic pediatric cardiomyopathy.
Cardiomyopathy may also be termed primary or secondary. Primary cardiomyopathy refers to cases where cardiomyopathy occurs by itself or for unknown reasons (idiopathic). Secondary cardiomyopathy refers to cases where the disease occurs secondary to a known cause such as heart muscle inflammation (myocarditis) caused by viral or bacterial infections; exposure to certain toxins such as heavy metals or excessive alcohol use; or certain disorders that affect the heart and/or additional organs systems. According to the Pediatric Cardiomyopathy Registry, approximately 79 percent of pediatric cardiomyopathy cases occur for unknown reasons (idiopathic).
Nonischemic cardiomyopathy may be further divided into four subtypes based upon the specific changes within the heart. These subtypes are: dilated, hypertrophic, restrictive and arrhythmogenic right ventricular dysplasia.
American Heart Association 8200 Brookriver Drive Suite N-100 Dallas, TX 75247 Tel: (214)784-7212 Fax: (214)784-1307 Tel: (800)242-8721 Email: Review.email@example.com Internet: http://www.americanheart.org
NIH/National Heart, Lung and Blood Institute P.O. Box 30105 Bethesda, MD 20892-0105 Tel: (301)592-8573 Fax: (301)251-1223 Email: firstname.lastname@example.org Internet: http://www.nhlbi.nih.gov/
Montgomery Heart Foundation for Cardiomyopathy 1830 E. Monument St./Suite 7300 Baltimore, MD 21205 Tel: (402)502-2578 Fax: (443)287-4109 Email: email@example.com Internet: http://www.hopkinsmedicine.org/cardiomyopathy/
Hypertrophic Cardiomyopathy Association 328 Green Pond Rd P.O. Box 306 Hibernia, NJ 07842 USA Tel: (973)983-7429 Fax: (973)983-7870 Tel: (877)329-4262 Email: firstname.lastname@example.org Internet: http://www.4hcm.org
Cardiac Arrhythmias Research and Education Foundation, Inc. (C.A.R.E) 427 Fulton Street P.O. Box 69 Seymour, WI 54165 USA Tel: (920)833-7000 Fax: (920)833-7005 Tel: (800)404-9500 Email: email@example.com Internet: http://www.longqt.org
Kids With Heart ~ National Association for Children's Heart Disorders, Inc. P.O Box 12504 Green Bay, WI 54307-2504 Tel: (920)498-0058 Fax: (920)498-0058 Tel: (800)538-5390 Email: firstname.lastname@example.org Internet: http://www.kidswithheart.org
Little Hearts, Inc. P.O. Box 171 110 Court Street, Suite 3A Cromwell, CT 06416 USA Tel: (860)635-0006 Fax: (860)635-0006 Tel: (866)435-4673 Email: email@example.com Internet: http://www.littlehearts.org
Congenital Heart Information Network (C.H.I.N.) 101 N Washington Ave, Suite 1A Margate City, NJ 08402-1195 Tel: (609)822-1572 Fax: (609)822-1574 Email: firstname.lastname@example.org Internet: http://www.tchin.org
Children's Cardiomyopathy Foundation PO Box 547 Tenafly, NJ 07670 USA Tel: (866)808-2873 Fax: (201)227-7016 Email: email@example.com Internet: http://www.childrenscardiomyopathy.org
Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
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Last Updated: 8/26/2010 Copyright 2003, 2010 National Organization for Rare Disorders, Inc.
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